Do Not Sell My Personal Information Policy

Cancer Help Desk (hereafter referred to as “we,” “us,” or “our”) is committed to protecting your personal information and respecting your privacy rights under applicable laws. This policy explains your rights regarding the sale of your personal information and how you can exercise them.

Cancer Help Desk operates under the domain cancerhelpdesk.org and can be contacted at [email protected] or 888-454-0804 for further information.

What Does “Do Not Sell My Personal Information” Mean?

Under the California Consumer Privacy Act (CCPA) and other international privacy laws, individuals have the right to opt out of the sale of their personal information. For the purposes of this policy, “selling” refers to the disclosure of personal information to third parties for monetary or other valuable consideration.

What We Do With Your Personal Information

Cancer Help Desk does not directly sell your personal information for monetary gain. However, we may share your personal data with service providers or partners to provide and improve our services, such as for analytics, customer support, and tailored content. Some of these activities may be considered a “sale” under applicable laws.

Categories of Personal Information We May Collect and Share

We may collect and share the following categories of personal information:

Identifiers (e.g., name, email address, phone number).

Internet activity (e.g., interactions with our website or advertisements).

Health-related information (if voluntarily provided, such as inquiries about cancer support resources).

Your Rights Regarding Personal Information

Depending on your location, you may have the following rights:

1. The Right to Opt Out: You may request that we stop selling or sharing your personal information.

2. The Right to Access and Control: You may request access to your personal data, its uses, and any third parties with whom it has been shared.

3. The Right to Deletion: You may request that we delete your personal information, subject to legal exceptions.

4. The Right to Correct Information: If your information is incorrect, you may request corrections.

5. Additional Rights (GDPR): Residents of the European Economic Area (EEA) or other jurisdictions may also have the right to restrict processing, object to processing, and request data portability.

How to Opt Out

To exercise your right to opt out of the sale of your personal information, please take one of the following actions:

1. Contact Us via Email:

Send an email to [email protected] with the subject line “Do Not Sell My Personal Information Request.”

Verification Process

To protect your privacy and comply with the law, we may need to verify your identity before processing your request. This may involve asking for additional information, such as confirming details already on file or providing identification.

How We Handle Requests

We will acknowledge your request within 10 business days.

We will respond to your request within 45 calendar days. If more time is required, we will inform you of the delay and the reason for it.

Opt-out preferences will be honored unless you explicitly provide consent for future sharing.

Cookie-Based Opt-Out

If our website uses cookies that may share data with third parties (e.g., for analytics or advertising), you can control this data sharing through the cookie banner presented upon your first visit or by accessing your browser settings.

Exclusions

Certain types of data sharing may not be considered a “sale” under applicable laws, including:

Sharing data with service providers under written contracts.

Sharing anonymized or aggregated data that cannot be linked back to you.

Contact Information

If you have questions about this policy or need assistance with your rights, please contact us using the information below:

Email: [email protected]

Phone: 888-454-0804

Address: Cancer Help Desk, 1325 HOWARD AVE # 944, BURLINGAME, CA 94010

Policy Updates

This policy may be updated periodically to reflect changes in legal requirements or our business practices. Please check this page regularly for updates.

Effective Date: 12/29/2024

This policy covers all regions where Cancer Help Desk operates and ensures compliance with global data protection regulations, including CCPA, GDPR, and other applicable laws.

See Our Privacy Policy

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Contact Information

 

 

 

Pathways to Precision: Improving Clinical Trial Access in Oncology Settings

Goal

Seamlessly integrate with an organization’s existing initiatives to strengthen connections between oncology institutions and the community they serve.

Overview

Biomarker testing is the foundation of precision oncology, yet over 60% of patients do not receive tumor testing, potentially limiting their personalized options. Furthermore, only 5-7% of patients access emerging therapies available in clinical trials. 

Patient access to these vital services can be hindered by a lack of understanding of the utility of biomarker testing, and clinical trial participation.

This pilot aims to collaboratively develop solutions to bridge such critical gaps, enhance patient education, and expand access to clinical trials, while supporting healthcare providers in delivering precision oncology care.

Solutions will be dependent on oncology clinics and programs’ KPIs (key process indicators) and goals.

 

 

Advancing Precision Medicine: Training Health Workers in Biomarkers and  Clinical Trials

Goal

Enhance its existing patient support services by providing specialized oncology education and expert clinical support.

Overview

As cancer treatment continues to evolve, personalized care decisions—such as biomarker testing, targeted therapies, and clinical trial participation—are becoming increasingly important. However, understanding these complex options can be overwhelming for both patients and those who support them.

Through this partnership, Cancer Help Desk will serve as an on-demand educational resource that delivers concise, digestible learning modules that equip community healthcare workers with the tools they need to confidently introduce advanced cancer care concepts. This initiative ensures that individuals facing cancer receive the most relevant, up-to-date information about their treatment and care options, ultimately empowering them to make informed, life-changing decisions.

Additionally, this collaboration will allow us to gather initial data on the impact of oncology education in community-based support settings. The insights gained will provide a foundation for future funding opportunities to expand and scale this initiative, ensuring even greater access to expert-driven cancer care.

Deborah Pappas is a seasoned banking professional with over 30 years of experience in commercial lending and more than a decade specializing in cash and treasury management tools. Her extensive expertise enables her to deliver tailored financial solutions to successful individuals, their businesses, and families. Deborah has a deep understanding of her clients’ unique needs, particularly those of closely held businesses, non-profits, and affluent individuals.  She had the opportunity to serve on several non-profit boards.  During her service in those organizations, she often worked as a member of Finance, Audit and Executive Board Committees.  She found being involved in the non-profit organizations gave her learning opportunities she never would have had otherwise.

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Crafting Survival

Crafting Survival is packed with gripping real-life stories, expert insights, and powerful lessons. We will hear from real people who have faced some of life's toughest challenges and people who have great knowledge to help us craft our survival.

Caitlan is a Biomedical Scientist with 6+ years of hands-on expertise in cell signaling and infectious disease, with a particular focus on cancer biology. She received her PhD from the University of Texas Medical Branch and made significant contributions to scientific literature, shedding light on crucial aspects of bacterial influence on cell signaling pathways that induce tumorigenesis. Her research has revealed key insights into the role of pathogens in modulating signaling processes that control cell fate and contribute to the initiation and progression of cell proliferation and tumorigenesis. Joining Cancer Help Desk allows Caitlan to share her scientific expertise with patients, caregivers, and anyone dealing with cancer. Caitlan has been personally impacted by cancer through supporting some of her closest family members during their cancer diagnosis.

Karena Kosco, PhD, has over 15 years of experience working in the biotechnology industry. Most recently she has focused on the development and validation of molecular diagnostic tests for oncology.  With this experience, she has gained a broad understanding of key oncology biomarkers, their importance in personalized medicine, and the selection of appropriate targeted therapies. Understanding the genetic alterations driving tumor growth has always been one of her primary professional interests. Joining Cancer Help Desk enables Karena to apply her scientific expertise in biomarker testing to directly help patients understand their options. Karena earned her B.S. in Chemistry (cum laude) at Rensselaer Polytechnic Institute and her PhD in Biochemistry, Molecular, and Cellular Biology from Cornell University.

Shelley has 40+ years of accounting and finance experience for both nonprofit and for-profit organizations. For the past 15 years, she supported the nonprofit community as CFO/Director of Finance/COO for organizations including Cancer Commons, TED, Palo Alto Art Center Foundation, Community School of Music and Arts, and Vista Center for the Blind and Visually Impaired. Shelley brings expertise in analysis, advice, and guidance regarding operation and strategic issues and works collaboratively to strengthen organizational effectiveness. Shelley has been personally affected by cancer after losing her husband to melanoma and some of her dearest friends to cancer. Shelley has committed her career to helping cancer patients identify the best care options. Through Cancer Help Desk, Shelley can lend her expertise to ensuring that the organization remains mission-focused and fiscally responsible.

Deb has 20+ years of experience in nursing and is multiply certified, including as an Advanced Practice Registered Nurse and Adult Gerontology Clinical Nurse Specialist with an oncology specialty. She was previously the Director of Patient Services for Cancer Commons and former System Lead for Oncology Navigation and Survivorship for a large healthcare system. She is regularly published by and a Contributing Editor for the Oncology Nursing Society’s publication, VOICE, and other nursing publications. Deb has committed the remainder of her working years to helping cancer patients navigate to the best possible care. Starting Cancer Help Desk is her “dream job” and every day is committed to helping patients and caregivers who can benefit from her experience as an oncology advanced practice nurse.

Diane is an accomplished medical science liaison in the biotech industry. Her career has been marked by exceptional performance and a deep commitment to bridging the gap between scientific innovation and clinical application. Diane has consistently demonstrated her sales, marketing, and business management expertise. Her ability to build strong relationships with world-class clientele has been a cornerstone of her success. As a medical science liaison, she has leveraged these skills to effectively communicate complex scientific information to healthcare professionals, researchers, and key opinion leaders.

Susan served as the CFO of Harvard Investment Company, based in Redwood City, CA. Prior to this position, she was the co-founder of Pacific Express Airlines, based out of Chico, CA. In addition, her background includes numerous years in the cruise industry, working for Royal Viking Line, American Hawaii Cruises and Crystal Cruises. She currently serves on the Boards for NCEFT, based in Woodside, CA and Peninsula Volunteers, located in Menlo Park, chairing both of their annual fundraisers. Susan has been involved with nonprofits for numerous years.

Mike is the founder of Courage Groups, an organization supporting caregivers and providing therapy for grief. A prostate cancer survivor, Looney has battled the disease for nine years using immunotherapy. After his wife’s death from Triple Negative Breast Cancer in 2021, his personal experience with caregiving and grief fueled his passion for helping others. Looney trained as a psychotherapist, focusing on mind and image control for Stage IV cancer patients at Cal Poly State University. He later transitioned to Organizational Development, working at Apple and Adobe before retiring in 2006.

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