Rare Cancer
Mesothelioma | Appendicial | Other
Receiving a rare cancer diagnosis can feel isolating, but you are not alone. Whether you are seeking information, emotional support, or connections with others facing similar challenges, there are trusted resources available to help you and your loved ones navigate this journey with confidence and care.
A platform for information sharing and support among those affected by rare cancers.
Promote the development of lifesaving treatment protocols for rare cancers.
Dedicated to curing rare cancers through strategic investments and innovative collaborations that facilitate effective research and accelerate the deployment of promising therapies.
Provide detailed cancer information, resources for support, and guidance on prevention and treatment.
Offer comprehensive cancer information, including types, treatments, and research.
Treat rare cancers, which may be easily misdiagnosed and ineffectively treated by non-specialists.
One-stop access to an entire team of rare-cancer experts who are up to date on the latest research.
Offer a full spectrum of services needed for diagnosis, treatment, and ongoing care of even the rarest and hard-to-treat conditions.
Offer support for people caring for someone with cancer.
WiTT combines the simplicity of a wedding registry with your personalized needs, making it easy to ASK for and RECEIVE help.
Developed by a caregiver to help gauge communication, disease status, and emotional well-being of you and your loved one.
Offer comprehensive cancer information, including types, treatments, and research.
Workshops and online support groups. Emotional resource education.
Resources for each stage of the cancer journey.
Local and online support. A patient and caregiver favorite!
Offer comprehensive cancer information, including types, treatments, and research.
Offer practical tips and recipes on eating well at all stages of the cancer journey.
Recipes by meal type and side effects. Videos and more.
Promote a better understanding of the importance of food and nutrition to positive medical outcomes of cancer treatment and recovery.
Recipes and art from the author of the Cancer Fighting Kitchen.
Evidence-based resources with over 1000 recipes, hundreds of nutrition and health articles, and how-to cooking videos.
Use Good Rx to find current prices and discounts at a pharmacy near you.
Family Reach has a database listing places to apply for financial assistance including cancer-specific funding.
Provide co-pay assistance programs for people with insurance and high co-pays for medications.
A coalition of organizations helping cancer patients manage their financial challenges.
Offer a variety of cancer-related legal information, including health insurance, rights at work, disability insurance, finances, estate planning, and medical decision making.
Empower and educate people with cancer to thrive in their workplace by providing expert advice, interactive tools, and educational events.
Help low- and moderate-income people find free legal aid programs in their communities and answers to questions about their legal rights. Use the state list on their website to find help related to housing, work, family, bankruptcy, disability, immigration and other topics.
Search for local programs through their MLP Network.
Information and inspiration concerning the life-long health care, emotional, and social needs of cancer survivors.
Information on life after cancer, long-term side effects, and living with cancer while receiving long-term treatment.
A simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.
Offer patient and caregiver stories from patients like you.
